Social changes and governmental control lead to a changing healthcare landscape. The socialization of healthcare implies that the support of adults with disabilities should focus more on working with networks. The government expects that in addition to informal, professional and voluntary care, secondary networks will also be called upon and activated by care providers. Research shows that these secondary networks are not yet much visible as a source of support and little is known about it. Network formation and reinforcement still appear to be an important challenge. In order to facilitate the role and/or position of secondary networks, it is necessary to explore the expectations, needs and motivations of the members of this secondary network around adult persons with a non-born brain injury (PNAH) and for what purpose this happens. In this way, organisations active in network development and community building experience that starting from 'care' is not always the best entry point to build sustainable, mutual connections. What is the role of the professionals in this?
As a qualitative research method, we use the responsive research approach (in which narratives and dialogue are key) and we question people from secondary networks through in-depth interviews and focus groups, both those with a strong and weak relationship with the individual, and professionals from organisations that provide outpatient support for PNAH living at home.